CFS Chronicles

My journey through the world of ME/CFS patient advocacy.

Friday, February 10, 2012

Please be alerted my page has moved.

http://www.cfschronicles.com/blog.html

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Heidi Bauer: I've suffered with ME for 16 years with a formal diagnosis at Johns Hopkins of Fibromyalgia/CFS in 1999. The prescriptions were exercise and an antidepressant. Relapses from exercise attempts were just as unwelcome as antidepressants, so I chose to do nothing after several attempts with expensive doctors and self-help books. I pushed past much of what I thought I could endure without help from the medical world. When I see some patients and how they were "helped" I believe I may have been better off to do nothing. First, do no harm. I was able to push through pain, fatigue and POTS along with other various symptoms to finish my graduate degree, teach for 5 years and have a beautiful set of triplets, now 8 years-old. My journey into the advocacy world forced some hard realities on me in the last few years. As with most things in life, it's a journey of discovery. I do hope that we will eventually see a day where this disease can be treated, cured and prevented.

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